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Zellweger Baby Support Network

Zellweger Baby Support Network
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HomeZellweger baby Support NetworkFeb 4, 2009
The Zellweger Baby Support Network was started by a group of parents whose lives have been affected in some way by a rare disorder. Our gift, in honor of our children, was to start this site, so we can help families and to raise awareness of these rare disorders. If your child has been diagnosed with Zellweger syndrome, a Peroxisomal disorder or another rare disorder, we want to help you. This is probably the scariest time of your life, but don't lose hope! You are not alone ...
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Photo AlbumPhotosApr 21, 2009
PBD conference 2009
42 Photos, 3 comments
Meet Evan Linton Photos
5 Photos, 5 comments
Meet Evan Linton
3 Photos, 1 comment
Jacob Arden DeWitt
10 Photos, 3 comments

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VideoVideoFeb 5, 2009
ThumbnailA tribute to all the babies.
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Blog EntryBlogApr 28, 2011
Hello. My name is Pamela Marshall and my 9 month old son, Ethan, was diagnosed with a Peroxisomal Biogenesis Disorder – Zellweger Spectrum when he was four weeks old.   Soon after his diagnosis while searching... more
Previous blog entries:
Nov 18-Jonah
Jul 26-Averi Janiece "AJ" Owens
Apr 8-Meet Evan Linton
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Marketplace ItemMarketFeb 5, 2009
ThumbnailShow your support and raise awareness with our magnetic ribbons!

The inner portion of the loop pops out for your fridge or anything metal--two magnets in one!

Price includes shipping.

To buy, go to: http://www.zbsn.org/documents/32_lister.... more
Previous listings:
Feb 5-ZBSN.org Silicone Band
Feb 5-Embroidered ZBSN Shirts
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